My First Surgery Got Approved!


I am totally over excited. Every time I see my eye doctor I ask “can I have have my tansplant yet” he always says no, we need to get the scleritis under control first.  I asked him yesterday and he said yes!  OMG I just couldn’t believe that finally I am going to get my cornea transplant!  He actually did the paperwork to give to the admissions officer so I know it’s going to happen.

I had my first Infliximab infustion last week and within about 24 hours I noticed an improvement, my eye is still a little bit red but nothing like it has been and I have zero pain which is just incredible.  I have my second infusion next week.  It is just fantastic not to wake up every day in severe pain.

I have a small surgery to do before the graft. Because I have some big deep blood vessels in the cornea he is going to take me into theatre and under a nerve block he is going to cauterise the blood vessels with a needle and laser.  This procedure has some risks as it can alter the cornea making the transplant difficult. It’s a very delicate procedure that has the potential to go wrong if he is not very careful. We need to get it done though as my graft has a much higher risk of rejecting if I have the blood vessels.

I have to wait maybe 8 weeks or so as he has to fit me in to his theatre list but I don’t mind I am just happy that finally my eyes are in a position that we can do the first graft.

A very very good day!


Why Don’t You Just Wear Glasses? – Keratoconus

As a person with advanced Keratoconus and has REALLY bad vision it irritates me no end when people tell me I should just be wearing glasses as though I am vain or something.

Get this, one time an Opthalmologist told me I should wear glasses … seriously!

I would LOVE to be able to wear a trendy pair of glasses but unfortunately my vision is so bad and distorted glasses do nothing.  I really don’t put these horrible big lenses in my eyes every day and endure pain and discomfort for vanity. It is a necessity. Without my scleral lenses my vision at last check was around 20/450 (when I asked my optometrist the question).  I reckon its worse than that now I am at “counting fingers” when I get my checks now.  Legal blindness is 20/200 so yeah i’m very blind.  Glasses are not going to fix that!

Anyway, I found some pictures on line of KC vision, thought it would be fun to post so you guys can see similar to how I see.blurry-vision

This is what night time looks like with lights.

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Sometimes headlights look like this but are often worse.


I get a very distorted version of this, much more than double vision, more like quadruple vision.

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As you can see from the photos my vision is extremely distorted and not good at all.

I’m counting down to my 1st corneal transplant in my left eye, I cannot wait I am so excited!   Even though it will be a high risk graft I’m not nervous, just really excited to maybe get some sort of good vision after a lifetime of this.